Advocacy, Self Advocacy and Autism Ranking:

Studies and Trials

This section provides details of studies of advocacy or self-advocacy for autistic people, or their parents or carers, which have been published in English-language, peer-reviewed journals.  Please note: Most of them are not studies into the effectiveness of advocacy or self-advocacy.

If you know of any other publications we should list on this page please email info@informationautism.org

Please note that we are unable to supply publications unless we are listed as the publisher. However, if you are a UK resident you may be able to obtain them from your local public library, your college library or direct from the publisher.

Related Studies and Trials

• Boshoff K. et al. (2016) Parents’ voices: ‘why and how we advocate’. A metasynthesis of parents’ experiences of advocating for their child with autism spectrum disorder. Child Care Health and Development. 42(6), Read Abstract (New Window)
  
  
• Burke M. M. et al. (2016) Brief report: The feasibility and effectiveness of an advocacy program for Latino families of children with autism spectrum disorder. Journal of Autism and Developmental Disorders. 46(7), Read Abstract (New Window)
  
  
• Itkonen T., Ream R. (2013) Autism advocacy: A network striving for equity. Peabody Journal of Education. 88(1), Read Abstract (New Window)
  
  
• Jamison J. et al. (2017) Examining the efficacy of a family peer advocate model for black and Hispanic caregivers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders. 47(5), Read Abstract (New Window)
  
  
• McCabe H. (2007) Parent advocacy in the face of adversity: Autism and families in the People's Republic of China. Focus on Autism and Other Developmental Disabilities. 22(1), Read Abstract (New Window)
  
  
• Rosqvist H. B. (2014) Becoming an ‘autistic couple’: Narratives of sexuality and couplehood within the Swedish autistic self-advocacy movement. Sexuality and Disability. 32(3), Read Abstract (New Window)
  
  
• Ryan S., Cole K. R. (2009) From advocate to activist? Mapping the experiences of mothers of children on the autism spectrum. Journal of Applied Research in Intellectual Disabilities. Read Abstract (New Window)
  
  
• Taylor J. L. et al. (2017) Training parents of youth with autism spectrum disorder to advocate for adult disability services: Results from a pilot randomized controlled trial. Journal of Autism and Developmental Disorders. 47(3), Read Abstract (New Window)
  
  
• Waltz M. et al. (2015) Autism self-advocacy in the Netherlands: Past, present and future. Disability and Society. 30(8), Read Abstract (New Window)
  
  

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Updated

17 Jun 2022

Last Review

01 Aug 2017

Next Review

01 Nov 2023