Impact on Family of Autism

Research

This page provides details of some of the most significant scientific studies and reviews on the impact of autism on the family which have been published in English-language, peer-reviewed journals. If you know of any other studies we should include please email info@researchautism.net with the details. Thank you.

If you know of any other publications we should list on this page please email info@informationautism.org

Please note that we are unable to supply publications unless we are listed as the publisher. However, if you are a UK resident you may be able to obtain them from your local public library, your college library or direct from the publisher.

Related Research

• Bonis S. (2016) Stress and parents of children with autism: A review of literature. Issues in Mental Health Nursing. 37(3), Read Abstract (New Window)
  
  
• Corcoran J., Berry A., Hill S. (2015) The lived experience of US parents of children with autism spectrum disorders A systematic review and meta-synthesis. Journal of Intellectual Disabilities. 18(4), Read Abstract (New Window)
  
  
• Davis N. O., Carter A. S. (2008) Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. 38(7), Read Abstract (New Window)
  
  
• DePape A., Lindsay S. (2015) Parents experiences of caring for a child with autism spectrum disorder. Qualitative Health Research. 25(4), Read Abstract (New Window)
  
  
• Hastings R. P. (2002) Parental stress and behaviour problems of children with developmental disability. Journal of Intellectual and Developmental Disability. 27(3), Read Abstract (New Window)
  
  
• Hastings R. P., Lloyd T. (2007) Expressed emotion in families of children and adults with intellectual disabilities. Mental Retardation and Developmental Disabilities Research Reviews. 13(4), Read Abstract (New Window)
  
  
• Hayes S. A., Watson S. (2013) The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders. 43(3), Read Abstract (New Window)
  
  
• Hillman J. (2007) Grandparents of children with autism: A review with recommendations for education, practice, and policy. Educational Gerontology. 33(6), Read Abstract (New Window)
  
  
• Iarocci G., Gardiner E. (2012) Unhappy (and happy) in their own way: a developmental psychopathology perspective on quality of life for families living with developmental disability with and without autism. Research in Developmental Disabilities. 33(6), Read Abstract (New Window)
  
  
• Meadan H., Ebata A. (2010) Families with children who have autism spectrum disorders: Stress and support. Exceptional Children. 77(1), Read Abstract (New Window)
  
  
• Myers B. J., Mackintosh V. H., Goin-Kochel R. P. (2009) 'My greatest joy and my greatest heart ache': Parents' own words on how having a child in the autism spectrum has affected their lives and their families' lives. Research in Autism Spectrum Disorders. 3(3), Read Abstract (New Window)
  
  
• Ooi K. L. et al. (2016) A meta-synthesis on parenting a child with autism. Neuropsychiatric Disease and Treatment. 12 Read Abstract (New Window) Read Full (New Window)
  
  
• Orsmond G. I., Seltzer M. M. (2007) Siblings of individuals with autism spectrum disorders across the life course. Mental Retardation and Developmental Disabilities Research Reviews. 13(4), Read Abstract (New Window)
  
  
• Osborne L. A., McHugh L., Reed P. (2008) Parenting stress reduces the effectiveness of early teaching interventions for autistic spectrum disorders. Journal of Autism and Developmental Disorders. 38(6), Read Abstract (New Window)
  
  
• Schuntermann P. (2007) The sibling experience: growing up with a child who has pervasive developmental disorder or mental retardation. Harvard Review of Psychiatry. 15(3), Read Abstract (New Window)
  
  
• Sim A. et al. (2016) Relationship satisfaction in couples raising a child with autism spectrum disorder: A systematic review of the literature. Research in Autism Spectrum Disorders. 31 Read Abstract (New Window)
  
  
• Trudgeon C., Carr D. (2007) The impacts of home-based early behavioural intervention programmes on families of children with autism. Journal of Applied Research in Intellectual Disabilities. 20(4), Read Abstract (New Window)
  
  
• Vasilopoulou E., Nisbet J. (2016) The quality of life of parents of children with autism spectrum disorder: A systematic review. Research in Autism Spectrum Disorders. 23 Read Abstract (New Window)
  
  

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Updated

01 Nov 2017